I just stumbled upon a fairly new blog and want to share it with all of you as it will tug at your heartstrings and also give you pause if you're of child-bearing age.
Many of you know that I have two beautiful nieces who were born with Spinal Muscular Atrophy or SMA as it's called. It's a genetic disease where the muscles eventually lose all tone and because the heart is a muscle and the lungs are powered by muscle, death is the result.
The new blog I found is that of a baby named Avery who has been diagnosed with SMA and is chronicling her bucket list as she has been given only 18 months to live.
Please go take a look at the blog and be aware that many of you carry this horrible gene and may not even be aware of it.
I'm sorry if this sounds choppy and disjointed and I'm sorry if you were expecting something about art. Just please take a look and say a prayer for Avery and her parents.
http://averycan.blogspot.com/
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